Family & Caregivers

Financial Planning

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Financial Terminology
Assessment of the Financial Situation
Anticipation of Future Expenses
Financial Security and Support for the Caregiver
Financial Resources
Accessing Assistance

In addition to the physical and emotional demands of caregiving, providing for the care of a loved one can be financially challenging and requires planning for the payment of present and future medical and living expenses.

Important Financial Terminology

Understanding financial terminology is the first step towards ensuring that funds are available to cover the costs of care for a loved one. To provide assistance, the Institute suggests the following publications:

Guide to Legal Issues for Pennsylvania Senior Citizens (pdf file)
Published by the Pennsylvania Bar Association and Pennsylvania Bar Insurance Trust Fund

This guide offers basic information to assist older adults and their caregivers in making important decisions to protect and maintain their independence. An extensive component focuses on financial planning, estate planning, legal documentation, and ways to minimize costs of living and securing necessary care.

ABA LawInfo.org
Provided by the American Bar Association

LawInfo.org offers important information on a variety of legal topics including finances, home ownership and protection, family and elder rights, workplace issues and several other topics.

Medicare: Glossary of Terms
Published by the Centers for Medicare and Medicaid

The Glossary of Medicare Terms provides definitions for commonly used terminology related to insurance and the filing of medical claims.

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Assessment of the Financial Situation

Before you can plan for future living and medical expenses, locating the following documentation is important:

  • Bank Accounts

    Identify and record all accounts (savings and checking), loans/liens—who holds them; and death provisions.
  • Investment Accounts

    Identify and record all investment assets including money market accounts, certificates of deposit (CDs), U.S. Savings Bonds, Treasury Bonds, and other money market and stock market equity investments. Record the account numbers, maturity dates, ownership, rights of survivorship, and payable upon death specifications.
  • Retirement Benefits

    This includes any pensions, retirement plans, individual retirement accounts (IRAs), annuities, military benefits and Social Security benefits. Identify and record employee identification number and or account number and respective value, military rank, and serial number.
  • Insurance Information

    Identify all types of insurance including medical, long-term care, and life insurance and record the policy numbers, benefit periods, beneficiary information, and value as applicable.
  • Legal Documents

    Locate or create a power of attorney, will, and living trust and obtain necessary witnessing of signatures and notarization.
  • Personal Property

    Locate deeds/mortgages/liens for all property including homes, real estate, vehicles, time shares, personal belongings (i.e. home furnishings, jewelry, collectibles).
  • Funeral Arrangements

    Locate documentation of any arrangements and prepayment.
  • Debts and Liabilities

    Identify and total accounts payable including mortgages, loans, notes, liens, outstanding accounts, lawsuit settlements, and taxes.

Where to Find My Important Papers
Published by the Family Caregiver Alliance, a National Center on Caregiving

Provides a worksheet to help you record where to find these and other important documents when they are needed. You may also want to create a list of phone numbers and addresses to access the necessary documentation and/or to file claims.

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Anticipation of Future Expenses

Once you have gained a better understanding of the current financial situation, attempt to identify any future expenses that may result from changes in the living situation and the need for care:

  • medical services (i.e. copayments, deductibles, uncovered expenses, maximum benefits)
  • travel and lodging costs
  • medications (prescription and over-the-counter)
  • medical supplies (i.e. wheelchair, lift chair, hospital bed)
  • support services (i.e. personal care, respite, home health)
  • home adaptations (i.e. wheelchair ramp, electric stair climber, bathroom modifications, and security measures)
  • alternatives to home living arrangements (i.e. assisted living, skilled nursing home)

Agencies that provide the products and services above can provide estimates of the costs associated with the anticipated expenses. For additional information on insurance coverage of some of these services, visit the Insurance and Payment portion of the family and caregivers portal.

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Financial Security and Support for the Caregiver

For primary caregivers, the government provides financial protection and support through:

  • Tax Deductions and Credits

    As a caregiver, you may be able to claim your loved one as a dependent to receive expense deductions on your federal taxes. For additional information, consult:

    Internal Revenue Service
    Department of the Treasury

    Provides information on reducing your federal taxes for caring for a spouse or a dependent.

  • AARP Tax Aide
    American Association of Retired Persons

Offers tax assistance on-line or in person at a site near you through a collaboration between AARP and the IRS Tax Counseling for the Elderly program.

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Accessing Assistance

Professionals that provide assistance in planning for immediate and long-term financial needs include:

  • financial advisors
  • estate planners
  • accountants

Many banks offer services that will help manage your accounts.

Before hiring any professional for assistance, be sure to verify:

  • credentials
  • work experience
  • educational background
  • membership in professional associations

Also ask if the professional is familiar with elder care or terminal illness issues.


Many of our documents are available in PDF format. To read PDF files, Adobe Acrobat Reader® software must be installed on your computer. Download Acrobat Reader (free version).
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