Family & Caregivers

Care Management

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Guides to Care Management
Caregiver Support Tools
Long-Distance Care Management
Care Management Resources
Accessing Assistance

Regardless of the level of care a loved one requires, for many people who struggle to achieve balance between family and work, assuming the role of caregiver presents an overwhelming challenge. Due to the changing and often complex needs of their loved one, family members and caregivers often feel inadequately trained to find and coordinate services and support to help older adults live independently in their own homes.

Caregivers can help older adults avoid premature and unnecessary hospitalizations, which in turn improves their overall quality of life, by taking advantage of these services:

  • health care services
  • mental health services
  • community assistance
  • education
  • vocational training
  • transportation assistance
  • legal services
  • advocacy
  • respite
  • recreational services
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Guides to Care Management

Often thrust into the role of caregiver unexpectedly, many family members and caregivers feel unprepared and at a loss as to where to begin when coordinating care for an older adult. The following publications offer guidance in planning for the care needs of a loved one.

Eldercare at Home: Caregiving
Published by the AGS Foundation for Health in Aging

A Guide to Family Caregivers of Older Pennsylvanians: Caregivers Practical Help (pdf file)
Published by the Pennsylvania Department on Aging

Guide To Being A Caregiver
Published by the Alzheimer’s Association, Greater Pennsylvania Chapter

Online Guide for Family Caregivers
Published by the American Geriatrics Society Foundation for Health in Aging

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Caregiver Support Tools

To help caregivers manage the care of a loved one, the following tools offer worksheets, checklists, and questions for consideration when making care management decisions and selecting quality care services.

Identifying the Health Care Team (pdf file)
Developed by the University of Pittsburgh Institute on Aging

Quick Tips When Talking with Your Doctor
Published by the Agency for Healthcare Research and Quality

You can access the following information for practical advice on finding quality health care services:

A Home Health Provider
Published by the American Association for Homecare

Adult Day Care
Published by the National Adult Day Services Association

Choosing the Right Personal Care Home
Published by the Pennsylvania Department of Public Welfare

Hospice Care: A Consumer’s Guide to Selecting a Hospice Program
Published by the National Hospice Foundation

Respite Care Guide (pdf file)
Published by the Alzheimer’s Association, Greater Pennsylvania Chapter

Quality Health Care (pdf file)
Published by the Agency for Health Care Policy and Research

In addition, the Centers for Medicare and Medicaid Services (CMS) offer the following publications and tools to help you make a more informed decision and to allow comparison of services among various providers.

Ask Medicare
Home Health Compare
Nursing Home Checklist (pdf file)
Nursing Home Compare

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Long-Distance Care Management

Today, families are often spread throughout the country and even the world. Although adult children often move away from home to other locations, many older adults relocate themselves to be closer to family or to enjoy warmer weather, a slower pace of life, a safer environment, and better opportunities for socialization. As parents age and their health declines, their children often confront the frustrating, time-consuming, and stressful task of managing care from a distance.

The Institute on Aging offers a care co-ordination program called Staying-at-Home to provide assistance to long-distance caregivers whose loved ones reside in western Pennsylvania. To speak to a referral specialist about the program, call 1-866-430-8742.

The following information sheet offers some points for consideration for long-distance caregivers:

Long Distance Caregiving
Published by the Alzheimer’s Association, Greater Pennsylvania Chapter

Accessing Assistance
Contact us for assistance with care management questions or to learn more about the Staying-at-Home Program, or e-mail us your questions.

Many of our documents are available in PDF format. To read PDF files, Adobe Acrobat Reader® software must be installed on your computer. Download Acrobat Reader (free version).
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